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PatientCrossroads collects detailed breast cancer survivor data for the Cancer Support Community M.A.P. Project.
Read the Wall Street Journal article
Download the full report to see how you can harness the power of your community with PatientCrossroads.
Integrated Disease Registry and Repository Services through PatientCrossroads and the NIGMS Repository at Coriell
Patient advocacy organizations and research investigators can now take advantage of a new integrated registry and repository resource to further advance rare disease research.
The Office of Rare Diseases Research (ORDR) in collaboration with PatientCrossroads, Children Hospital of Philadelphia and WebMD, has launched a pilot program to establish a Global Rare Diseases (Patient) Registry and Data Repository (GRDR) to collect patient clinical information without any personal identifiers (de-identified information), for clinical research.
| Follow @patientregistry | Copyright 2011 Innolyst, Inc. |